Monday 28 December 2015

Wedding Fever

So my dads getting married today! I'm really excited because I'm the bridesmaid and I'm  feeling absolutely fine tummy-wise, even treating myself to a glass of prosecco whilst me and the bridal party get our hair and make up done! 


It must be some sort of Christmas miracle that I have managed to enjoy my Christmas this year...no tummy pains, no blood and no feeling low! If you would've told me last year that all this would be happening this year I would've said you were mad! 

Wishing my dad an amazing day can't wait to see him happy with his new wife (second time lucky!) 

Love Joelle xoxo

Tuesday 22 December 2015

What a YEAR



I am hands down, super duper excited
for Christmas this year. Not because of the presents, or the food, or even watching Elf on Christmas Eve...but I'm just so excited to be able to eat a roast on the 25th without vomiting it up 20 minutes later...I'm excited about being able to have a drink with everyone to celebrate, without being in pain afterwards..

So much has changed for me in a year and this time last year was so horrific for me and my family at this special time of year. I really was at rock bottom and thought it would never end. But before I knew it a year has past and here I am a whole year later, more excited than ever to be able to eat what I want, drink what I want and feel how I want to feel which is RELIEF. Because without the support from my family this year and the medicine I have been on (more about that to come soon) it would just not have been anything close to what it is now! 

Sorry for the happy-rant just been feeling like a normal teenager lately after 18 months of just feeling trapped in a teenagers body not being able to be myself. 

I wish you all a very merry Christmas and happy new year!!! 

Love Joelle xoxo

Monday 21 December 2015

Hospital Throwbacks- The three extraordinary women

Hi guys,

Here's another throwback story from hospital which looking back at the end of the year feels like light years ago!

So, the first time i was in hosp in January this year i met so many inspirational people that really helped me cope with being the youngest person on the ward!
i wish i could remember names but as i was dosed up on morphine (see last story) unfortunantley it was just impossible at the time.

the first few days were pretty scary, i was in the AMU ward at Basildon hospital. it was bright and lively all day, i was hardly ever alone, always with my mum, friends or granparents to keep me company.
I met three pretty cool women who each had pretty rare conditions (that i also cant remember the names of).  The woman in the bed next to be looked heavily pregnant, however just before i could congratulate her she quickly corrected me and told me she had some sort of disease in her pancreas that caused severe bloating. She was the life and soul of the ward, always making us laugh which we all definitley needed!

The woman opposite me was about 30 and became best mates with the first woman, they were like a double act, everyday her boyfriend would bring in Mcdonald's for her and she would mooch around in her bright pink-classicly Essex- onesie.

The third woman, who shut herself behind the curtain for the first day or two, finally revealed herself and we soon saw the reason why she was so nervous about showing her face. She had had a minor fall at home playing with her children but had a rare side effect which had caused the bump on her head to swell up to twice the size of her head in a dark black tumor-like growth. Whilst telling us the story and how it could be cured was heartbreaking, it reminded me (and probably all the other women) that bad things happen to normal, innocent, good people. A beautiful woman's life changed from a rare disease. She was so scared it would never go, but with the right treatment throughout the weeks she was at the hospital, the lump began to go down, and almost a year later i hope she is well and never has to face something like that again.

Besides us four girls having unfortunate, unlikely conditions, we continued to entertain eachother throughout our stay which made the whole thing SO much more bearable for us all. These women, to this day are an inspiration to me and my family as they proved no matter what life throws at you, keep smiling and you will always win!

Continuing on a happier note, i hope you all have a very merry Christmas and 2016 is an amazing, sucess-filled year for you. I definitley hope this is a better year for me as i finish my a-levels and begin the life of an adult once i turn 18 in a couple of weeks!

Thanks for reading!

Love Joelle xoxo

Monday 14 December 2015

My WORLD

Grangrad Gramps

So this is my idol, my everyday laughter and smile. My grandad (grangrad) is one of my favourite people in the world, his positivity is incredible and has been a main contributor to my new outlook on coping with a life with my condition. Each time i have been in hospital this year he has sat by my bedside for hours on end telling me stories about being in the Navy. He would just talk and talk to me, taking my mind off everything and making me laugh and even sometimes cry about all the adventures he had travelling the world from the age of 15. I could go on about my grangrad all day but for now here's a picture from his bithday a few months ago of me and him. 


The low down... Story time with Joelle Part 1

So you're probably wondering what's wrong with me. So before i do a post about what it actually is i've got, here's a really quick story of one of the worst days of my life as a result of what i've got.
Pls note this story happened before i was diagnosed which is why it's pretty awful, but you'll get it once you've read!


 I was diagnosed in January of this year with Ulcerative Colitis after being admitted to hospital, however had been suffering from October 2014, the hospital failed to give me a correct diagnosis for nearly 4 months...so last Christmas and my 17th birthday this January, consisted of rolling on the floor in agonising pain for hours on end, and vomiting after every single meal - literally, i was the thinnest and palest I'd been in my whole life.

The GP, and even the hospital at some point were just telling me it was IBS, a common side effect of stress amongst teens and young people...but what was happening to my body felt so much more than that, especially because i know people with IBS and when speaking to them about it, they could not relate whatsoever with what i was going through.

Pretty scary, huh?

I thought my whole body was against me, no matter how many painkillers or water i drank, it just got worse and worse. So much that on Christmas Day last year, all i could eat was two measly roast potatoes due to constant nausea and stomach cramps (for people that don't know me-a roast dinner is my FAVOURITE meal ever!) to then vomit it up on the side of the road on the way home.

Pretty grim, and without sugar coating it, it was not a very merry Christmas at all.

Skipping a few more weeks, it was soon after my birthday (where i couldn't even enjoy my own birthday cake) when i had one of the worst nights of my life. My tummy felt like it was con-caving, physically squeezing into a tight ball is the only way i can describe it. I managed a short 4 hour shift at the cafe i work at at weekends. Throughout the shift i couldn't even stand to serve customers, i was having to take their order whilst leaning on the serving counter- so embarrassing but at the time, a last resort.
 My boyfriend at the time picked me up and took me to his house where i laid on the bed howling in pain asking for someone to "just punch and knock me out" so i couldn't feel it any more. He was panicking and ended up phoning my step dad and telling him i need to go to a hospital as i started saying things i didn't mean, the pain almost started making me hallucinate and to his horror, actually laugh -like the evil demon thing does in horror films when their being burnt alive.

To be honest the rest of that afternoon was pretty hazy. I recall being carried like a baby out of my boyfriends house by my stepdad, i heard the cars from the main road where there were probably people driving past wondering why the hell a 17 year old girl was being carried out of a teenage boys house whilst screaming in pain.

I was in a state of complete delirium, the pain seemed to become my body and i couldn't remember any thing else, just the sound of my step dad frantically calling through his phone book trying to get some help- he didn't want to go back to the hospital as not only was he fed up that the hospital hadn't got to the bottom of my problem, but the painful 3 hour+ wait in A&E with a weak, bewildered young girl that was vomiting stomach acid every 10 minutes, didn't seem ideal.

The next thing i remember is laying in bed being fed soup by my distressed mum with sips of water- that stayed down for all but a few minutes.

I then remember it being about 1am and sitting on the bathroom on the floor sobbing to my step dad and mum with a look of pure helplessness. They argued about taking me to A&E but with the risk of being given some tablets and sent home (which had already happened 3 times since October) they tried to put it off.

Next thing i know i'm laying in the back of the car, covered in duvets on our way to the hospital. My parents say i was so delirious i was talking to myself, asking myself "what is happening to me?" "why me, what have i done to deserve this?" - this was quite mild as to what i was saying earlier to my boyfriend which to my horror was more like "please kill me, i can't do this any more".

Nearly finished, I promise!

So after 2 hours in A&E they've agreed to let me stay the night. They put me in a bed and rolled me into a ward that was almost pitch black and dead silent- I probably got a few dirty looks when I arrived still sobbing. Suddenly, as my parents stood over my left side, a nurse appeared at my right and quite vigorously jammed a massive needle into my thigh. It was morphine, and a lot of it. All of a sudden I felt a huge rush through every vein in my body...the pain disappeared and I took a sigh of relief...I then noticed my mum blow me and kiss and leave the ward with my step dad, I tried to scream for her to come back but after nearly 24 hours solid screaming and the morphine, the room became a daze and I slept so peacefully for the first time that year.

I spent just over a week in hospital... the first time. It was pretty depressing, but those experiences are for another day!

Sorry this was so long I so didn't plan for that, and that was all in one day! I hope that gives you a taster of how distressing my life WAS at the beginning before I got put on the correct medication. Don't worry, it's not like that any more.

Also I know I said this blog wasn't going to be morbid and sad, and it's not! I just felt I needed to tell you some serious stuff so you feel like you know me better, and besides, this is the first time I've thought about, let alone write about that day in such depth since it happened!


More to come soon, hopefully a lot shorter too.

Thanks for reading!

Joelle xoxo










Sunday 13 December 2015

I have arrived...

Hello World!


Welcome to my brand new blog (that my little brother practically forced me to make) that i'm super excited about. This is something i've been meaning to do for ages and with a little (large) nudge from my brother, here i am, ready to tell you all my story and hopefully make you smile as i talk about my road to recovery from a long-term condition i have been suffering from! 

Dont worry, this isnt going to be some depressing blog about how ill i am, i want it to be fun, entertaining and hopefully inspiring to anyone out there that is suffering from either the same conditon or even has something completely different but still feels inspired that there's never a reason to give up and without being too cliche, there IS a light at the end of the tunnel! 

I won't say any more for my first post, i just wanted to let you know what this blog is about. I'll probably include other life-related things just to keep it all real. 

Hope you like it and there will be more to come very soon! 

Joelle xoxo